Nate-star - a Super Power Baby!

Here he is - our little eight month old (at the time) superstar - Nate David Roy Ryan-Chang! Super power baby :-)

Click here to see the Sunday TV on SPB featuring Nate

 

And some recent snaps of the little man in action......

Cot standing - EASY!

Modelling my new Jasper Conran courtesy of Brian and Dorothy!

Developmentally, we're continuing to work on his standing, his supported walking with his push walker, and more recently, a little bit of crawling!! He is continuing to gain strength and we are just thrilled! Given we are on leave this week, we had an extra physio session so Robin and I can be there, as well as a speech session too. Here is a wee snippet of Nate cruising.....

We are also continuing the focus on his speech, and trying to encourage as many new sounds as possible. He loves to play 'sound mimic', although its more about who can be loudest - Mummy or Nate! There are really no clear or consistent words as yet, except maybe 'Hi Mon-Mon' for the cat. Granny and Nanny both swear they have heard him at various times previously though, and tonight I am sure he said 'Uck' for 'Duck' while he was in the bath.....I had only had two vinos (it's a holiday week!),so I am almost positive!?!

Medically we had several checks this week, with both ENT and a bonus unplanned catchup with his Respiratory Doctor, who heard we were in at Starship so popped by to see Nate while we were there. Saves us a later trip back in, so we were very appreciative! Everything seems to be good on the ENT front, with no plans from our ENT Doctors perspective for exploratory surgery at this point (unless Respiratory feel its warranted), although we may have to have a general anaesthetic to have his hearing properly tested at some point soon.

Respiratory-wise, we were asked to complete another overnight oximetry test last night (checks his oxygen saturation levels, when he is sleeping without cpap). The results for that will come at some point, but that will probably lead to another overnight sleep study at Starship. When/if he ever passes that sleep study, then he could one day come off Cpap altogether! Here's hoping. If his apnea is linked to hypotonia, then this could be just a matter of time. Of course if its more about obstruction, it could be longer/unknown :-(. We were also prescribed a preventative inhaler for possible asthma, as he is quite wheezy. That wasn't unexpected, and will be interesting to see how that goes for him. Plus Nate is a big fan of face masks! Not! :-(

All in all, not a bad week for our perfect little super-star :-)

Xx

Practising on his saxophone like Grandad Roy used to!

A stirring rendition of 'Old MacDonald' underway :-)

 

 

 

 

 

 

 

 

 

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