Good news - worthy of another quick post!
About a week or so after Nate's diagnosis, we heard of a photographer (Rachel) and her husband (Sam) who were hoping to embark on a project to photograph unique chromo kids within New Zealand. I actually referred very briefly to this in a past blog - they were the inspiration behind us referring to Nate as our little superhero :-).
Refer to www.superpowerbabies.com for more info...
Rachel and Sam's' motivation is simple - to capture the essence of these gorgeous kids, focusing on what they CAN do, as opposed to what they can't. It is intended not only for the families of chromo kids today, but for parents and families of chromo kids in the future - after all it's a very scary thing having a unique chromo child, and getting your head around all the challenges of that, and a book that celebrates the good within that would be well worthwhile. The idea was actually inspired by Rachel and Sam's own unique wee girl Evie, and it is intended as a tribute to her and all of her awesomeness (refer to their website for more on that!).
Well, way back then, we submitted an application about all of Nate's superpowers (naturally there were lots!), and have been hoping ever since that MAYBE he might just be lucky enough to get selected (if the project ever gets off the ground).
Well this week, we found out that our little superhero Nate HAS been selected!!!! Yay!!!!
And the project is well on its way to being funded with about $25k fundraised already! So FINGERS CROSSED that it gets there!!
We're also hoping to convince Rachel and Sam to come and stay with us, when they come to Auckland to photograph all the gorgeous kids up in this neck of the woods! And it would be amazing to be able to help them get this worthy initiative off the ground - please go to https://www.pledgeme.co.nz/1392 if you are interested in helping this along too - the bonus is you can get your own copy of the book with our wee Nate in it :-).
PledgeMe - Super Power Baby Project
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| Toy focused and blowing bubbles - and all at the same time! |
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