Well it's official - we just failed our second sleep study :-(.
Not a surprise this time around - so nowhere near the emotional angst that we experienced last time. In fact I remember being nearly in tears when Dad arrived at the hospital and feeling at my absolute max in terms of coping, back in July when we failed the first one.
So are we becoming more seasoned to less-than-ideal news?? Or maybe just more aware of our blessings with Nate, especially as we learn more about T9M?? Or maybe just more in control as a result of time, more sleep, more knowledge, and more support in place?? I think its probably a combination of all of that!
Anyway the little man put up with the awful process - that involves hours and hours, as well as lots of gunk and electrodes all over him - like an absolute trooper. (I think he gets that from me! :-) LOL!).
Nate and Nanny Sylvie |
Wired up for the night! |
So after three days and two nights in hospital, we are now back home! Yay!
Back home on Cpap again, but still home (refer to the July blog 'The Check Ups Begin', for more info on Cpap). It's still very disappointing that we need it - but comparing the results of the overnight sleep study with a night on Cpap, the benefits to Nate are very clear. No de-saturations lower than 89% and an average of 98%, after experiencing one within his sleep study that was as low as 68% and one that was less than 88% for a period of 18seconds. So it's a no-brainer really. Lets just hope that he accepts it better than last time - the fun and games begin!!!
First night back on Cpap in Starship |
We really want to thank our wonderful Granny, Grandaddy, and also our marvellous Nanny Sylvie - who took care of Nate in hospital during the days. We really could not have managed without them and are so lucky, lucky, lucky to have that support. Nate's face just lights up when he sees them, and is so comforting to know that he has 'Team Nate' looking after him and rooting for him :-). The Ward 26B team - who Nate loves to flirt with every time one of them comes into his room to check on him - were also just awesome. So big thanks all round!
Robin took the first night with the sleep study itself, and I had the second night as we re-introduced cpap. I suspect though that we probably had the easy shifts, as those hospital days can be very very very long with a baby. Check out the awesome sketch of Nate by Nanny Sylvie when they managed to finally get him settled and asleep one day - talk about talent - we really lucked out with a nanny-extroadinare! (And no, none of you other Mums are allowed to poach her!!)
Beautiful Nate - by Nanny Sylvie |
So only two more hospital appointments to go......this week!
They ('they' being those who have been there, done that) say that the first year is the worst as you go through appointment after appointment of medical checks. Apparently it all settles down once you know what you're dealing with, so here's hoping we're well on our way to that stage!
Nate & Sophie practising raspberries :-) |
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