It's been such a busy few weeks for us of late with so much on our plates, but at least it feels like we are getting more sorted as each day passes.
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| Gorgeous in his Disney Winnie The Pooh outfit! |
We are mostly looking forward to getting past all our hospital appointments, and settling into more of a rhythm with Nate's check-ups.
We don't have too many more specialist appointments this side of Christmas (mainly audiology for his hearing aid), but a couple of others to come in January and February around paediatric surgery and ENT, and probably another sleep study sometime around March or April. All of those will require hospital stints, but touch wood, that should be it until his first birthday in March. It isn't uncommon for T9Ms to require orthopaedic surgery at some point in time, but with any luck we won't have to cross that bridge, or at least not for awhile.
For now, Nate is doing well, bar a cough that has troubled him over the last week or so. We did take him to the GP, who said it was just a virus, and his lungs were clear, so he wasn't overly concerned. In fact he described Nate as 'bonny' and 'robust'. First time I've heard of a hypotonic baby called 'robust', but I'll happily take it :-)
In our most exciting news of the past week, we (Nate, Granny, Grandaddy and myself) had the pleasure of meeting Rachel Callender of the Super Power Babies Project, for Nate's photo shoot! Such an awesome experience and thankfully Nate turned on the charm for some really amazing shots!
TVNZ's 'Sunday' were also there, filming parts of Rachel's trip around NZ photographing chromo kids, and covering the SPB project itself. Janet McIntyre and cameraman Dave were watching Nate's shoot. Nate and I were also filmed discussing our experiences to date, as well as Nate's superpowers. So with any luck, Nate won't just make the SPB book, but 'Sunday' TV as well! True superhero stuff :-)
However in all the excitement of the session, we forgot to even take a SINGLE photo or video of the whole experience, for the blog!!! :-( Sorry everyone! You'll just have to take our word :-)
The book is expected to publish around July of next year, although not sure when that Sunday episode will go to air. Watch this space!
And the house continues to progress along as well...here are the shots from this week. Plus we move next week!! It's all getting a little more believable now! Next shots might even be finished ones?!
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| Prepping the gate / stair area |
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| Driveway in |
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| Stairs to come |
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| Downstairs bathroom, tiling not yet complete |
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| Upstairs bathroom, vanity not complete |
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| Nate's bedroom |
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| Light in guest bedroom |
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| David Trubridge hall lights in, floors still to be stained |
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| Stair feature to be done next - watch this space |
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| Looking from hallway door into kitchen and lounges |
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| Kitchen island still a work in progress |
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| Kartell lights in, although still to be lowered |
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| Lights in the formal lounge, floors still to be stained |
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| Deck complete, fireplace & pergola still to go in |
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| Standing where the fireplace will be |
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